Just wanted to give you all an update and if you are praying people please do so we would appreciate it.
Baby Joshua update:
It's looking like Joshua didn't have a seizure. What the nurses saw was his body stiffen for around 10 seconds and wasn't sure if it was the end of a seizure or what. They have run multiple tests and so far everything has come back negative. They were supposed to do a brain ultrasound last night, but we haven't heard if it was completed or not or what the results were. They believe, at this point, what was seen was Joshua straightening/stiffening to breathe. They were going to do a spinal tap to check for menegitis, but at the moment have decided not to do it, unless things change.
Conditions that they have diagnosed Joshua with so far are a cleft palate, retracted lower jaw, & retracted tongue. This is what they believe has caused all the breathing issues. This is also causing major feeding issues. He is currently on an NG (nasal/gastro) feeding tube. Because of what he has been diagnosed with they have told us that he will never be able to efficiently nurse (if he's even able to) or bottle feed efficiently. He will have to have special bottles to even eat. He will be trying that today. As soon as he has learned how to eat, he should be able to go home. They are thinking the absolute earliest he could go home is Tuesday, possible worse case scenario is about a month.
They have called in a geneticist that will see Joshua today, because they discoverd he has an extra set of ribs, 13 pair, instead of 12. They are looking into another possibility as well that affects his eyes. They have also called in 2 other specialists, but I don't remember what they do....I'm on information overload at the moment.
This will be a lifelong process requiring surgeries, speech pathologists, specialized doctors, speech therapists, among other things. Please pray that through all this that God will get the Glory. John 9:1-5 has been the scripture that many people have been impressed to tell us about.
